Legal & Privacy Information
Operating with full transparency, ethical integrity, and legal compliance
1. Privacy Policy
Icon Organ Donor is committed to protecting your privacy. This policy details how we gather, process, and protect personal identifiers and clinical histories submitted during registration.
π Data We Collect:
- Personal Identification: Full name, date of birth, gender, and contact coordinates.
- Clinical Information: Medical history items needed solely for matching donor eligibility.
- Preferences: Communication configurations and specific organ/tissue donation declarations.
π How We Use Data:
- Facilitate donor-recipient matches and coordinate with transplant networks.
- Distribute critical awareness newsletters and event schedules.
- Maintain a secure digital registry for verified medical lookups.
- Compile anonymous analytical data to optimize regional campaigns.
π Security & Protection:
All data transfers are encrypted via SSL/TLS layers. Access is strictly confined via authorization matrix controls to verified hospital administrators and audited yearly. We NEVER sell or share your data with third parties without explicit consent.
2. Account & Data Deletion
You have the right to request deletion of your account and personal information at any time from our databases.
To request deletion: Send an email from your registered address to iconfoundation14@gmail.com with the subject line Delete My Account.
What is permanently deleted:
- Personal profile, linked contacts, and registered E-donor credentials.
- Submitted contact forms, inquiries, and application log history.
What is retained:
- Transactional records or accounting logs legally required for compliance or auditing are kept for the minimum statutory period.
3. Terms & Conditions
By accessing the Icon Organ Donor platform and utilizing our registration services, you explicitly agree to comply with the following regulations:
1. Donor Registration Criteria
- You must be at least 18 years of age to register as a voluntary donor.
- Registration is entirely voluntary and can be revoked at any time through our portal.
- Consent from a parent or legal guardian is mandatory for registering minors.
- Donors may need to undergo medical screening to establish organ viability prior to transplant operations.
2. Information Accuracy
- You agree to supply entirely truthful, complete, and accurate personal and clinical records.
- You agree to update the organization regarding changes to your contact parameters or overall health status.
3. Platform Code of Conduct
- All interaction through the portal must remain respectful and constructive.
- Any attempt to provide fraudulent medical profiles or violate digital boundaries will lead to immediate account termination.
- All users must comply with national and state organ transplant legislation.
4. Indian Legal Framework
Organ donation in India is strictly regulated to prevent commercial exploitation and guarantee ethical patient access. Icon Organ Donor operates in full compliance with the following:
Transplantation of Human Organs & Tissues Act (THOTA), 1994
Provides the primary legal structure regulating organ retrieval, storage, and transplant surgeries. Prohibits any commercial trading of organs. Formally defines brain death and establishes state-level authorization committees to review organ requests.
THOTA Amendment Act, 2011
Streamlined the deceased donation sequence, mandated the appointment of transplant coordinators in ICU networks, set up a national registry database (NOTTO), and instituted harsher penalties for illegal procedures.
5. Donor Rights
Every individual registered with Icon Organ Donor is protected by core rights:
- Right to Withdraw: The absolute right to cancel donation consent at any point prior to transplant.
- Confidentiality: Complete protection of medical files from public search directories.
- Dignity: The guarantee of respectful, dignified treatment of deceased bodies during recovery operations.
- Informed Consent: Access to complete explanation of processes, medical terms, and retrieval workflows.
- Equality: Prohibition of discrimination based on religion, caste, gender, or economic status.
- Final Say: The donorβs family retains final legal consent to execute deceased donations.
6. Ethical Guidelines (WHO Compliance)
We adhere strictly to the World Health Organization (WHO) Guiding Principles on Human Cell, Tissue, and Organ Transplantation:
- No Financial Gain: Organs must be donated altruistically without monetary transactions.
- Clinical Need Allocation: Allocation matches are determined solely by medical indicators and waitlist seniority.
- Living Donor Protection: Absolute safety audits and psychological evaluations for living marrow donors.
- Trafficking Zero Tolerance: Immediate reporting of any commercial inquiries to law enforcement.
7. Certification & Organization Registration
Icon Organ Donor is recognized as an audited, compliant social service trust in India:
| Certification / Body | Details & Reference Numbers |
|---|---|
| Companies Act, 2013 | Registered under Section 8 (Non-profit Social Welfare Organization) |
| 12A & 80G Tax Exemption | Exempt status verified for public donations and corporate giving |
| Ministry of Health & Family Welfare | Officially recognized as a facilitating non-medical provider |
| ISOT Member | Registered member of the Indian Society of Organ Transplantation |
| NOTTO Partner | Registry details integrated with the National Organ & Tissue Transplant Organisation |
| ISO 9001:2015 | Certified Quality Management System for donor registries |
8. Official NGO Documents & Certificates
You can view and verify our official registration papers, tax exemptions, and filing records below:
Income Tax Return (ITR) Filings
9. Disclaimer
Important Information: Icon Organ Donor is a facilitating registry and awareness organization, not a clinical healthcare provider. All retrieval procedures, matches, and transplant surgeries are performed exclusively by certified medical professionals in licensed hospital facilities. Organ allocation follows national clinical protocols; donor registration does not guarantee a transplant outcome, nor does it force an involuntary donation.
π¨ For urgent medical emergencies, contact local hospitals directly or call 108/112.
10. Grievance Redressal Mechanism
We are dedicated to resolving concerns regarding registry access, privacy, or communications within a transparent timeframe:
Grievance Officer Contact:
π§ Email: iconfoundation14@gmail.com
π Phone: +91 90827 23289 (MonβFri, 9 AMβ6 PM)
Our Resolution Timeline:
- Acknowledge Receipt: Within 48 hours.
- Investigation & Review: Completed within 15 working days.
- Escalations: Unresolved items can be appealed to the State Appropriate Authority or Consumer Forums.